01home02babybrain05lifelist04tastebuds08bbbs10roguewedding11nerdybirdy12travels

Thursday, March 31, 2016

My Little Cricket’s Delay: My Heart and My Head are Finally Aligning

In this journey I am dealing with multiple emotions, from multiple angles. When I feel like I am drowning I think about the blessings in our lives. And I remember that it could always be worse. I don’t want to minimize what I am going through; being a parent is hard enough, being a parent of a child with special needs is doubly hard. However being a parent of a child with a terminal illness. Being a mother that looses a child. Would be so much worse. It doesn’t make my heartbreaking situation any less but having perspective allows me to realize that there are people out there who have it worse.

I read this the other day and it is amazing, truly a great way to describe how being a mom to a kid with special needs feels.


“I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...... When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting. After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland." "Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy." But there's been a change in the flight plan. They've landed in Holland and there you must stay. The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place. So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met. It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts. But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned. And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.”

Welcome to Holland
by Emily Perl Kingsley

No comments:

Post a Comment